the Nielsens Photography & Design BLOG

Some of you may remember Lilie… she is a little angel whose family brought her to FL for a family vacation so that Lilie could stick her little toes in the ocean and have a much needed family trip together. Lilie has a condition called GM1, which is hard for me to describe so I will link her mother Jen’s blog information to share with you. She is almost to the end of this fight, she will probably pass away in the next day or so. I am so heartbroken for Jen and family. I can’t imagine going through what they have went through in the 2 years since Lilie’s birth. It was an honor for me to photograph their family while they were here. Lilie is such a sweet baby girl and it’s so hard to know that in the next few days she will no longer be with her family. My heart goes out the Jen and family, I wish I could wrap my arms around them all with a big hug. I have a hard time putting into words to even post a reply on her blog… it’s so hard to know what to say. I just wanted to post here to show my support and admiration for this family, and my love to Lilie. Please say a prayer that she passes peacefully and that her family can begin to heal and find a new normal. To learn more about Lilie, please click HERE!